Patient Voice Initiative
Patient Voice Initiative
Mission Statement – Establish a diverse representation of transplant patients and families whose experiences, expertise and voice will inform and improve transplant processes, policies and transparency in a patient-centric fashion.
Vision – The ASTS Patient Voice Initiative (PVI), a voluntary patient advocacy program, was launched in late 2024, via direct patient contact at a small number of US transplant centers. Thus far, more than 300 patients have stepped forward to participate in this inaugural ASTS endeavor.
Objectives:
- Provide patients with an avenue for input into transplant processes
- Give patients transparency to current processes and those on the horizon
- Leverage patient voices to provide government with insights into patient needs
- Inform ASTS endeavors and mission in a patient-centric fashion
Interested in participating?
Contact Emily Besser, Associate Director, Advocacy & Professional Practices, at Emily.Besser@asts.org.
Upcoming Events
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Policy Pulse Webinar | March 10, 6:30PM ET
Join ASTS Secretary Debra Sudan, MD, and Legislative & Regulatory Committee leaders Amit Mathur, MD, Caroline Rochon, MD, and Bruce Gelb, MD, as they walk you through the policy updates, recent transplant policy wins, and ways to get involved.
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Spring Advocacy Day | April 29-30
Join ASTS leadership for the 2026 Spring Advocacy Day to learn more about legislation and sit down with policymakers to discuss the important issues affecting the transplant community.
Learn moreView our April 7 Webinar - Updates on The National Transplant System and ASTS Transplant Advocacy:
Resources for Patients:
- View slides from the February 4, 2025 Welcome Webinar
- American Journal of Transplantation (AJT) Digest for Patients
- ASTS Councilor-at-Large Dinee Simpson, MD, answers your transplant-related questions (YouTube)
- SRTR Transplant Journey Subway Map
- OPTN Modernization Initiative
- ASTS Position Statements
- ASTS Advocacy Library
Additional resources for kidney patients may be found through the American Association of Kidney Patients.
*ASTS does not control the content of pages outside the ASTS.org website, and external links do not constitute an endorsement of any information, materials, or products offered on them.